Patients

Are you suffering from Trigeminal Neuralgia ("TN")? Do you wish to help now?

If you are a patient with trigeminal neuralgia and are interested in taking part in research projects, please look at our research page for current projects.

Are you concerned you may be developing TN?

We are developing a screening questionnaire which may help in differentiating dental pain from non-dental causes which include possible TN. In future it will be available here and on the internet. Please see the research page for details of this project.

Who will be the Institute's Patients and how will they be seen?

We are anticipating that once our screening tool has been validated, it will be available here and on the internet. We will advertise it through social media. It can be used by facial pain sufferers as well as healthcare professionals. If the screening tool indicates a possible diagnosis of TN, sufferers will be directed to this website. Here they will be given details of centres of excellence throughout the UK where they could seek clarification of their diagnosis and undergo MRI scans. We would also encourage patients to register their details on our database. This would enable us to follow up all the patients with their final diagnosis and management plan. Thus long term outcome data on a larger group of patients would be obtained and potentially would provide details on prognosis.

Patient contact

Patients should contact Professor Joanna Zakrzewska on joanna@tninstitute.net

For general support patients should contact Trigeminal Neuralgia Association UK ("TNA")

Last updated 6.1.26